MINDSET: Management Information & Decision Support Epilepsy Tool
Self-Management Epilepsy Decision Support for Adult People with Epilepsy and Their Providers
Program Snapshot
KEY COMPONENTS
- Tablet-based decision aid for use in the clinic visit to assist people with epilepsy (PWE) and health care providers in assessing the patient’s epilepsy self-management (S-M) behavior for seizures, medications, and lifestyle.
- Helps PWE select achievable S-M goals and strategies that match their needs and preferences.
- Promote shared clinician-patient decision making, improve quality of medical decisions, and reduce costs.
Program Description
MINDSET is a tablet-based decision aid for use in an outpatient healthcare setting to assist both the patients and their health care providers (HCPs) in assessing the patient’s epilepsy self-management behaviors relating to seizures, medications, and lifestyle.
MINDSET has 3 stages:
1.)Data input – The participant completes this stage while in a clinic waiting area prior to an appointment. They input into a tablet a wide array of information relating to their seizures, medications, and lifestyle behaviors.
2.)Self Assessment – MINDSET then produces a profile for the participant to bring into their appointment to review with their healthcare provider. This profile 1) flags low frequency self-management behaviors 2) prompts selection of up to three self-management goals for completion before the next clinic visit and 3) prompts selection of behavioral strategies and assessment of self-efficacy.
3.)Review and Discussion – The patient and the Healthcare Provider together review a printed Action Plan that includes the selected goals and strategies. If there are no flagged behaviors a text-based congratulatory message is provided.
Reasoning behind MINDSET:
- Self-assessment by PWE increases their awareness of the breadth of S-M issues.
- S-M goals selected by PWE match their needs and preferences.
- Identifying practical strategies makes S-M easier for PWE to achieve.
- Collaborative patient-provider decision-making can enhance epilepsy S-M.
- Action plans reinforce the clinic discussion and provide ongoing
- guidance beyond the clinic.
MINDSET is designed for use during a regular clinic visit to:
- Increase awareness of PWE and their HCPs regarding self-management.
- Identify S-M behaviors needing improvement
- Enable PWE to select seizure, medication, and lifestyle self-management goals
- Enable PWE to select behavioral strategies to accomplish their goals
- Identify the self-efficacy of PWE to achieve their goals.
- Focus the patient-provider communication on achievable behavioral goals during clinic visits.
TARGET POPULATION
English and Spanish speaking adults (18 years of age) with epilepsy, and their health care providers.
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2021 SUCCESS STORY FEATURED BY THE CDC CAN BE FOUND HERE!
The Arizona Prevention Research Center Special Interest Project MINDSET is supported by the Health Promotion and Disease Prevention Research Center cooperative agreement U48DP006838, Centers for Disease Control and Prevention, U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $300,000 annually for the 2024-2027 funding cycle. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.